Friday, January 16, 2015

Risperdal and Gynacomastia

When visiting the USA recently, i was surprised to see on TV that any one who has used Risperdal and seen signs of gynacomastia should report to be compensated. This struck a cord because my son has developed gynacomastia after using risperdal for 4 years. The drug was excellent in 'calming' him and therefore facilitated some of the learning he achieved, however the side effects were tremendous including excessive weight gain, diabetic-like symptoms such as excessive urination and increased appetite. After stopping the drug however some of the symptoms disappeared but excessive weight and gynacomastia are still there. I live in Tanzania so i know that compensation would be difficult! Anyway sometimes as parents we do face the difficult decision of 'risks versus benefits' and i am so sad of what has happened, the weight was so much until he had to be operated on one of his knee! Seriously i wish they would compensate some of us - who do not live in the US.

Wednesday, November 19, 2014

How do you address excessive weight gain for a non-verbal autistic child?

I wish i knew!! The child can not communicate and does not understand that he needs to eat in moderate amounts, its a challenge specifically when they are taking medications that lead to increased appetite!! It is a constant struggle to reduce the amount of food. The experience i have is someone who turns aggressive! if you do not provide the food, he really does not understand! Behavior change for these children is uncomfortable! Another 'young adult' autistic that i know is totally the opposite, he does not want to eat at all, and if he has to eat it has to be the same diet, no change!! Its very true that every autistic child is 'quite unique', however i still have the same challenge, 'how do you address the weight?' I wish i knew!!

Tuesday, November 18, 2014

Trying out brocolli in autism care

Sulforaphane supplements are supposed to ease autism symptoms, currently trying it out! Providing brocolli to Stevie everyday mixed with carrots, onions, tomatoes and green chilli. Delicious dish anyway! After a month have noticed better concentration, hope its due to the dish! Quieter and happy Stevie! Still continuing with the dish on a daily basis, as part of lunch!

Monday, August 4, 2014

'Siblings' in caring for autistic children - an aspect to be considered all the time!


 
They live with the child all the time and they have to understand and adjust to the special needs by the brother including caring for him. Constant explanations especially for the younger child is important. One day he asked me "Mum why cant you fix his brain so as to be like other people?" Eventually they do understand and love him unconditionally! They significantly assist in the care!